{"id":6944,"date":"2026-09-21T19:31:45","date_gmt":"2026-09-21T17:31:45","guid":{"rendered":"https:\/\/latin-seq.com\/?p=6944"},"modified":"2026-09-21T19:51:08","modified_gmt":"2026-09-21T17:51:08","slug":"genetic-counselling-resources","status":"publish","type":"post","link":"https:\/\/latin-seq.com\/en\/genetic-counselling-resources\/","title":{"rendered":"Genetic counselling resources"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1248px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p>The <a href=\"https:\/\/latin-seq.com\/en\/research\/#latinseqplus\"><u><strong>Latin-SEQ+ study<\/strong><\/u><\/a> has highlighted a need for greater genetic counselling support across Latin America to help deliver genomic medicine effectively.<\/p>\n<p>Based on interviews with patients and healthcare professionals, we have developed practical resources to support informed decision-making and consent for genetic testing. Clinicians also identified a need for guidance on when genetic testing should be considered in children.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-1 fusion-title-text fusion-title-size-three\" style=\"--awb-margin-top:1.0em;--awb-margin-right:0px;--awb-margin-bottom:0px;--awb-margin-left:0px;--awb-margin-top-small:0px;--awb-margin-right-small:0px;--awb-margin-bottom-small:0px;--awb-margin-left-small:0px;\"><div class=\"title-sep-container title-sep-container-left fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><span class=\"awb-title-spacer fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><\/span><h3 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;text-transform:capitalize;--fontSize:25;line-height:var(--awb-typography1-line-height);\">Patient toolkit<\/h3><span class=\"awb-title-spacer\"><\/span><div class=\"title-sep-container title-sep-container-right\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><\/div><div class=\"fusion-text fusion-text-2\"><p>We have developed a toolkit <strong>\u201cMy genes my choice\u201d<\/strong>\u00a0to help patients and families understand genetic testing, consider the questions that are important to them, and discuss these with their healthcare professionals and relatives before making a decision.<\/p>\n<\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" style=\"--button-border-radius-top-left:0.5em;--button-border-radius-top-right:0.5em;--button-border-radius-bottom-right:0.5em;--button-border-radius-bottom-left:0.5em;--button_text_transform:uppercase;\" target=\"_blank\" rel=\"noopener noreferrer\" href=\"https:\/\/latin-seq.com\/wp-content\/uploads\/2026\/09\/My_Genes_My_Choice_Patient_toolkit_LatinSEQPlus.pdf\"><span class=\"fusion-button-text\">Download the patient toolkit<\/span><\/a><\/div><div class=\"fusion-title title fusion-title-2 fusion-title-text fusion-title-size-three\" style=\"--awb-margin-top:1.0em;--awb-margin-right:0px;--awb-margin-bottom:0px;--awb-margin-left:0px;--awb-margin-top-small:0px;--awb-margin-right-small:0px;--awb-margin-bottom-small:0px;--awb-margin-left-small:0px;\"><div class=\"title-sep-container title-sep-container-left fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><span class=\"awb-title-spacer fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><\/span><h3 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;text-transform:capitalize;--fontSize:25;line-height:var(--awb-typography1-line-height);\">Information for clinicians<\/h3><span class=\"awb-title-spacer\"><\/span><div class=\"title-sep-container title-sep-container-right\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><\/div><div class=\"fusion-text fusion-text-3\"><p>We have developed a poster for healthcare professionals providing a practical checklist of the information patients should receive before being offered a genetic test.<\/p>\n<\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-2 fusion-button-default-span fusion-button-default-type\" style=\"--button-border-radius-top-left:0.5em;--button-border-radius-top-right:0.5em;--button-border-radius-bottom-right:0.5em;--button-border-radius-bottom-left:0.5em;--button_text_transform:uppercase;\" target=\"_self\"><span class=\"fusion-button-text\">Download the clinician poster<\/span><\/a><\/div><div class=\"fusion-text fusion-text-4\" style=\"--awb-margin-top:1.0em;\"><p><em>The patient toolkit and clinician poster are designed to complement each other and support conversations between patients, families and healthcare professionals.<\/em><\/p>\n<\/div><div class=\"fusion-title title fusion-title-3 fusion-title-text fusion-title-size-three\" style=\"--awb-margin-top:1.0em;--awb-margin-right:0px;--awb-margin-bottom:0px;--awb-margin-left:0px;--awb-margin-top-small:0px;--awb-margin-right-small:0px;--awb-margin-bottom-small:0px;--awb-margin-left-small:0px;\"><div class=\"title-sep-container title-sep-container-left fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><span class=\"awb-title-spacer fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><\/span><h3 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;text-transform:capitalize;--fontSize:25;line-height:var(--awb-typography1-line-height);\">Video: When should children have genetic testing?<\/h3><span class=\"awb-title-spacer\"><\/span><div class=\"title-sep-container title-sep-container-right\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><\/div><div class=\"fusion-text fusion-text-5\"><p>This short animated video helps explain genetic testing to patients and families, so they can better understand when testing a child for a genetic condition should be considered.<\/p>\n<\/div><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:640px;--awb-max-height:480px;--awb-align-self:center;--awb-width:100%;--awb-margin-top:1.0em;--awb-margin-bottom:1.5em;\"><div class=\"video-shortcode\"><lite-youtube videoid=\"W2RRb88kgO8\" class=\"landscape\" params=\"wmode=transparent&autoplay=1&enablejsapi=1\" title=\"YouTube video player 1\" width=\"640\" height=\"480\" data-thumbnail-size=\"auto\"><\/lite-youtube><\/div><\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-3 fusion-button-default-span fusion-button-default-type\" style=\"--button-border-radius-top-left:0.5em;--button-border-radius-top-right:0.5em;--button-border-radius-bottom-right:0.5em;--button-border-radius-bottom-left:0.5em;--button_text_transform:uppercase;\" target=\"_blank\" rel=\"noopener noreferrer\" href=\"https:\/\/youtu.be\/W2RRb88kgO8\"><span class=\"fusion-button-text\">Watch the video<\/span><\/a><\/div><div class=\"fusion-text fusion-text-6\" style=\"--awb-margin-top:1.0em;\"><p><em>These resources are currently available in English. Spanish versions will be available on this website by 31 October 2026.<\/em><\/p>\n<\/div><div class=\"fusion-title title fusion-title-4 fusion-title-text fusion-title-size-three\" style=\"--awb-margin-top:1.0em;--awb-margin-right:0px;--awb-margin-bottom:0px;--awb-margin-left:0px;--awb-margin-top-small:0px;--awb-margin-right-small:0px;--awb-margin-bottom-small:0px;--awb-margin-left-small:0px;\"><div class=\"title-sep-container title-sep-container-left fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><span class=\"awb-title-spacer fusion-no-large-visibility fusion-no-medium-visibility fusion-no-small-visibility\"><\/span><h3 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;text-transform:capitalize;--fontSize:25;line-height:var(--awb-typography1-line-height);\">Feedback<\/h3><span class=\"awb-title-spacer\"><\/span><div class=\"title-sep-container title-sep-container-right\"><div class=\"title-sep sep- sep-solid\" style=\"border-color:var(--awb-color8);\"><\/div><\/div><\/div><div class=\"fusion-text fusion-text-7\" style=\"--awb-margin-top:1.0em;\"><p>We welcome feedback and comments on these resources. Please contact the Latin-SEQ+ study team:<\/p>\n<ul>\n<li><a href=\"mailto:lorraine.cowley@newcastle.ac.uk\"><u>lorraine.cowley@newcastle.ac.uk<\/u><\/a><\/li>\n<li><a href=\"mailto:liliana.arias-uruena@newcastle.ac.uk\"><u>liliana.arias-uruena@newcastle.ac.uk<\/u><\/a><\/li>\n<li><a href=\"mailto:latinseq@newcastle.ac.uk\"><u>latinseq@newcastle.ac.uk<\/u><\/a><\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>The Latin-SEQ+ study has highlighted a need for greater genetic counselling support across Latin America to help deliver genomic medicine effectively<\/p>\n","protected":false},"author":1,"featured_media":6955,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[54,55],"tags":[],"class_list":["post-6944","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured","category-news"],"acf":[],"_links":{"self":[{"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/posts\/6944","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/comments?post=6944"}],"version-history":[{"count":20,"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/posts\/6944\/revisions"}],"predecessor-version":[{"id":6970,"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/posts\/6944\/revisions\/6970"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/media\/6955"}],"wp:attachment":[{"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/media?parent=6944"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/categories?post=6944"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/latin-seq.com\/en\/wp-json\/wp\/v2\/tags?post=6944"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}